This page has been set up to show support to "Friends of Ichthyosis"
and to help raise as much awareness
Please click on the links at the bottom of this page to make direct contact with
Melanie at "Friends of Ichthyosis" & visit the on line store links to help raise money by buying great goodies, 100% goes to Friends of Ichthyosis
Many Thanks
and to help raise as much awareness
Please click on the links at the bottom of this page to make direct contact with
Melanie at "Friends of Ichthyosis" & visit the on line store links to help raise money by buying great goodies, 100% goes to Friends of Ichthyosis
Many Thanks
A not for profit organisation for those affected by the rare genetic skin disorder Ichthyosis. Distinguished by scaling, fragile, blistering of the skin with many various types, Ichthyosis can also cause other health problems
as well as emotional problems |
Friends of Ichthyosis provides support, advice, a 'friend' to turn to should anyone need to talk to someone who truly understands what they are going through, having had first hand experience themselves. The voluntary committee are either sufferers themselves, have children with the condition or both. They strive to assist families in whatever way we can, and to educate the public and medical professionals by raising as much awareness as possible. They have other big plans for the group in the future, and with your support, whether you are affected by Ichthyosis yourself, or know someone with the condition, or if you would just like to show your support for their cause, then please do join them by sharing their Facebook page and 'liking'. Check back for updates of any events, etc and please share with them any ideas you may have for fundraising etc. Thank you
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Please visit the direct links >>>
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